Role

• Provides thought leadership and drives client strategy development
• Former global health care director at top 10 PR agency

“If we listen intently, truly hear what patients and caregivers are saying to us, and act on their insights, we can learn to ease the burden of disease.”

Role

• Provides senior management and operations oversight
• Accounting and financial support
• More than 15 years of communications and agency financial experience

“Patients and caregivers offer profound inspiration and insights as they journey to health.  Learning from their experiences to improve treatments and outcomes is critical to the organizations involved in their care.”

Role

• Ensures that the patient perspective is included in strategy development and execution
• Former patient advocacy group founder/executive
• Expertise in online patient communities, grassroots advocacy, and coalition-building

“As a cancer survivor and long-time patient advocate, I have lived the difference between being voiceless and bringing a powerful voice into the systems that are supposed to help people. We believe in the moral imperative behind the patient mantra: Nothing about me, without me.”

Role

• Leads sponsorship and global mapping strategies
• More than 10 years’ health care communications experience

“Listening to and understanding the patient and caregiver experience is the only way to truly address their needs. Partnerships and programs that live this practice are the ones that can make the most impact.”

Role

• Leads regional and global coordination strategies
• Expertise in global and national client-side advocacy relations
• Social worker with deep experience in direct patient service, nonprofit programming, and evaluation

“We have a collective responsibility to get down to the grit of patient-centeredness – to consider health care through the lens of how we would want ourselves or our loved ones to be treated. And we always need to remember that the patient is a whole person – before, during, and after treatment.”

Role

• Drives innovation on Rx4good and client-side
• Direct-to-Consumer and Direct-to-Patient health expert

“All of us have been, are, or will be a patient at some point in our lifetime. Knowing that – and holding it close – is what drives everything we do.”

Role

• Manages new business outreach: contacts and newsletters
• Provides support on client projects

“We all want to participate in decisions that affect our lives. Why should our health care decisions be any different?”

Role

• Expertise in strategic planning and measurement
• Drives executive-level writing and creative storytelling

“Rx4good upholds the common denominator driving all stakeholders in the ecosystem — to improve patient outcomes and ease suffering along the way.  Keeping everyone’s sights set on the highest order mission is what we are all about.”

Role

• Leads patient experience research and insight gathering
• Moderates convening activities with patients, caregivers, advocacy leaders, and KOLs

“There is an expertise that only comes with living each day with a given diagnosis. It is this unique perspective that, when truly heard and integrated, can change health care. As a patient, an advocate, and a scientist, I work to amplify the voices that bring this expertise.”

Role

• Provides strategic support and counsel for patient advocacy
• Profound knowledge of patient advocacy organizations and engagement

“It is our duty to ensure the patient voice is not just felt or heard but acted on to create equitable change for all communities.”

Role

• Implements policy changes through successful advocacy and coalition building
• Team leader with strong roots in the rare disease community

“It is deeply gratifying to help patients find their voice, share their story, and change policies to drive positive action that truly helps others.” 

Role

• Leads research projects and synthesizes data to deliver meaningful strategies and insights
• Deep understanding of information design and strategy

“There are so many conflicting realities for patients. It is our shared responsibility to listen, empathize, and learn so we can help bring their experiences to the forefront and make positive, lasting changes to their health and their lives.”

Role

• Manages day-to-day account activities to ensure efficient processes and high-quality deliverables
• Expertise in healthcare communications, patient engagement, and online patient communities

“Patients and caregivers should all feel empowered to become active participants in their own care. Their involvement and shared insights are the keys to creating a system that not only supports their current needs but drives the science to develop faster.”

Role

• Supports research and strategy projects
• Background in health communications and nonprofit programming

“When it comes to decisions that affect our health, we all deserve a seat at the table.”

Role

• Supports patient advocacy research
• Expertise in organizing and facilitating the development of patient councils and KOL interviews

“Patients are the stakeholders, heart, and soul of the health care system. It is our job to give them a voice to make sure we are holding ourselves and others accountable to the highest standards of care. This starts with building relationships, keeping an open mind, and continuing to learn from each other.”

Role

• Supports day-to-day client needs and project management
• 10+ years of experience in health care, nonprofit programming, and patient advocacy

“As a nurse, nonprofit professional, and patient, I have seen the challenges faced in our health care system from multiple lenses. Incorporating the importance of the patient voice and lived experience into everything we do is not just beneficial, but vital to improving patient-centered care, outcomes, and quality of life across all disease states.”

Role

• Supports client advocacy engagements
• Manages events and programs on behalf of clients

“We all have a responsibility to amplify the voices of patients and caregivers — bringing power to the individuals to make a beneficial difference.”

Role

• Has been an activist, advisor and consultant on patient advocacy and patient involvement in the area of research & development as well as health policy on the European and international level for over 20 years.
• Has co-founded LeukaNET, the CML Advocates Network, the Leukemia Patient Advocates Foundation, the Acute Leukemia Advocates Network and WECAN.
• Has been the Director of the European Patients’ Academy (EUPATI) for 5 years.

“Patients and carers need to be equal partners in healthcare research and policy. Their involvement as co-creators generates measurable value in healthcare services that intend to deliver to patients‘ unmet needs.”

Role

Conference reporter, member of conference programme committees, reviewer of research applications to national and European Funders, Experienced work package leader in global, European and national research projects.

Long-term experience on patient involvement in research, drug development and regulatory processes.

Experienced multilingual speaker and panelist.

“If you want to go quickly, go alone. If you want to go far, go together.”

Role

Coordinates the patient cluster in the IMI big data project HARMONY.
Previously, he coordinated courses and contents for the European Patients’ Academy (EUPATI).
Works as a peer helper and counsellor in HIV, viral hepatitis and mental health.
A linguist and psychologist, Tamás obtained a PhD based on research into the significance and perspectives of patient organizations in Europe in 2020.

“My trajectory from patient to expert to researcher has taught me everything about the importance and impact of patient education and patient involvement, and the process of empowerment and value creation that this process entails.”

Role

Leads industry services and evidence generation services and drives strategy, business development and operations at Patvocates

Former CEO of Myeloma Patients Europe and co-founder and past chair of the Workgroup of European Cancer Patient Advocacy Networks (WECAN)

Cancer patient and patient advocate for 15 years

“I am passionate about empowering patient communities so that healthcare systems, pharmaceutical companies and academic research base their decisions on true unmet needs and robust evidence”

Role

Managing and overseeing all the projects and collaborations with Patient Organisations at global or european level.

Graduated in Biomedical Sciences with a Master of Science in Molecular Biotechnology at the University of Barcelona

“Patients and caregivers are the key to understanding all aspects of their disease. There is so much all stakeholders can learn and benefit from by listening to them.”

Role

Physician, Patient Advocate, Management Consultant, providing strategic insights and guidance leveraging more than 15 years of experience in the pharmaceutical industry in Japan and globally.

Co-founded a project to bring PFMD (by The Synergist) to the Japanese market.

Role

Health care public policy professional engaging civil society, industry and governments

Role

Health policy, strategy and engagement