Celebrating Rare Disease Day with the Rare & Ready Coalition
Every year on the last day of February, Rare Disease Day reminds us of the shared responsibility to ensure timely access to care for the millions of individuals living with…
Blog
: Advocacy
Compounding Pharmacies, Telehealth Companies, and the Duty to Inform
Over the past several years, prominent entry points into care for patients seeking treatment for chronic conditions, particularly obesity and its related comorbidities, are compounding pharmacies and telehealth platforms. For…
- by: Tamar Sekayan
February 18, 2026
From Situationship to Relationship: Steering Giving and Engagement Towards Shared Value
Every year, patient advocacy teams across pharma and biotech dedicate enormous energy to supporting organizations across the disease landscape. Lately, many teams have been asking a powerful question: How do…
- by: Rivkah Block, PhD
December 18, 2025
Smart Moves at Year-End
Patient Advocacy Strategies To Set You Up for 2026 and Beyond This time of year, many in pharma and biotech are looking at budgets with an eye toward action: what…
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Is Patient Advocacy in Danger of Stalling Out?
This is a challenging time to be a patient or a patient advocate. Extensive cuts at NIH and FDA, a retraction of DEI commitments, major universities losing their funding—all threaten…
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